Wednesday, 27 May 2015

Winners & Losers?

The "19 Kids and Counting" controversy is just that, a controversy. We now have Christians and non Christians arguing over Josh Duggar's passed discretions, whether or not he and his family truly understood and/or presently understand the gravity of his passed actions, and if all involved received the appropriate therapy. (In Josh's case, the utmost punishment).

But what was, or now is the best punishment?

This issue will never be resolved by the world, only in each of our minds.

I'm sure In Touch magazine is now gaining in popularity, with new website and magazine subscriptions, the whole reason for this controversy in the first place. They have proven themselves to be in-depth investigators. They have unwrapped a man's tarnished past and shared it with the world. They won!


Now what?




Thursday, 23 April 2015

Tourette Syndrome + Co morbidity

My daughter Ashlynd was diagnosed at age five with Tourette Syndrome. It was two-edged news to us. Finally she was diagnosed with "something", but on the other hand, now she was finally diagnosed with "something".

Who new the steep hill we were about to climb for the next 7 years? Her tics were just the "tip of the iceberg". We had no clue of the co morbid disorders that would be attached to her TS, nor how present they would be in her every day life, nor that they would be even more crippling than her primary diagnosis.

 Readers know about our fight to find Ashlynd the appropriate doctors, therapies and medications, yet many may not understand that educating friends, family and teachers of her disorders has been just as difficult a task.

Here is part of an article about TS and its co morbid  "tag alongs":

Frequently, the symptoms of TS and it’s co-morbid conditions are seen as
“purposeful behaviors” not related to the disability at all, when at its very core, TS is really all about a lack of control. 
Read the full article here:
 http://tsa-illinois.org/wp-content/uploads/2012/05/Tourette-Syndrome-More-than-Just-a-Tic-Disorder-Understanding-TS-to-Advocate-for-Your-Child.pdf

Tuesday, 21 April 2015

Toyota?

Mama Kat's writing prompt this week has prompted me to share this little tale:

Years ago when my daughter Ashlynd was still very young, (3-4 years old) the family was watching television when a  commercial for Toyota came on. She advised her father and I that she had a Toyota.

We smiled at her comment and explained that a Toyota was a car, and that she didn't own one.

 She quickly responded by telling us that she had a Yoda and that it was a "toy Yoda"!

Friday, 17 April 2015

Ash has created a blog!

Be sure to check out my daughter Ashlynd's blog, called What Doesn't Kill You... She hopes to help others by sharing information and advice, and insights about her life!

An absolute MUST for canadian families wih disabled children!!

My daughter's struggle to find solace from her crippling mental health disabilities has been an ongoing battle for years. Having had a few stays in the children's mental health ward, along with taking part in a program  for children with debilitating anxiety (24/5 stay for three months), all of which took place three hours away from home, has been an ongoing struggle for both her father and I. (Not to mention her older brother)

Ashlynd's mental health has caused many ripple affects throughout her everyday life, from school to extra curricular activities to home life. In many cases these ripple affects caused more of a "lack" of life! Making sure she was getting the help she needed became our main goal for years and years. We never thought we'd ever qualify for any benefits from these trials.

 The Canadian child disability tax credit was brought to my attention some months ago by a family friend. She and her husband had investigated this "phenomenon". Weighing the pros and cons, they pursued the process by filling out the appropriate paperwork and were pleasantly surprised to have received a substantial  tax refund for the approved years.

My husband and I decided to look into the process ourselves. We approached Ashlynd's psychiatrist about filling out the claim forms, (...of which he did) and now we wait!

Although my husband and I have not received any refunds as of yet, I ask all families of disabled dependents to seriously look into this process. We all know the mental toll it takes on families, but what about the financial toll?

Please find the appropriate claim forms here: http://www.cra-arc.gc.ca/E/pbg/tf/t2201/README.html

Tuesday, 24 March 2015

Ashlynd's Post about Body Image!

It's Ashlynd again! I hope everything is going well for everyone! This post is for those who struggle with body image. Everyone has felt this before, some more than others. I have felt it before, especially when my anxiety was bad! I have felt worthless before, as well. But that was when I turned to God! And He has helped me to realize that there is no such thing  as a physically ugly person, because He makes no mistakes! He made you perfect, just the way you are!  Those added features that He has given you, some which you may not like, are what makes you beautiful and unique!  If He hadn't of added those features, you would not be unique, and different from everyone else!  And if He hadn't of made us unique, we'd all look the same! If you are struggling with body image, just know that you are beautiful, no matter what you look like or what illness you suffer from! You don't have to try to look different for anyone, because you are already perfect in God's eyes, and that's what matters! Share this to anyone you feel needs to hear this, and feel free to let me know your story and if what I've been writing has helped you! <3 XO, Ashlynd

Friday, 13 March 2015

Irate teacher

Accomodating our expectations of students with mental challenges.


This post is geared towards those working with children within the school system. It amazes me how obvious it is for us to acknowledge the needs of students with physical needs (Although probably could be better) but not the requirements of those students suffering from mental challenges. There is still much work to be done.

For example, if a physically challenged student is not capable of partaking in gym class, I would expect that he/she would not fail this class because they were not capable of participating. In the same light, I would hope that my daughter with Tourette syndrome, OCD and ADD would not be expected to pass every class by the same expectations as those students without these challenges. I, by no means, expect my daughter to cruise through school without any effort on her part. I expect her to do her absolute best. Unfortunately, her anxiety often times takes up so much of her thoughts and energy that it makes retaining any extra info nearly impossible.

This is not a post against my daughter's school. They are accommodating and continue to keep me informed of her progress. This is a post to enlighten schools on how to help those students with mental challenges that inhibit they're ability to learn.

The following site shows many ways that schools can help their students flourish.

 http://www.learnalberta.ca/content/inmdict/html/tourette_syndrome.html

Response to previous post by a school teacher:(
Teachers know that TOOOO OFTEN the kid is just hiding behind these labels. They use add and adhd as an excuse to get out of trouble. How is it that schools ran perfectly for hundreds of years before we started making excuses? Did add just recently develop? I think PARENTING is the biggest thing that has changed. For hundreds of years a paddle solved 99% of school problems and the belt at home took care of business there. Now schools cant even expel SERIOUSLY BAD KIDS because they can hide behind a "behaviour disorder"
so they get to disrupt a class DAILY and the other kids suffer.....but its OK BC we have to accommodate their needs.

My response:

http://tourettemama2012.blogspot.ca/2013/01/id-rather-be-dead-she-said-at-only-8.html

Teacher's final response:

That is why we need 2 tracks of schools. One for special needs and one for the regular kids. But liberals pushed for inclusion, which hurts everyone and helps nobody

What do you think?