Thursday, 23 April 2015

Tourette Syndrome + Co morbidity

My daughter Ashlynd was diagnosed at age five with Tourette Syndrome. It was two-edged news to us. Finally she was diagnosed with "something", but on the other hand, now she was finally diagnosed with "something".

Who new the steep hill we were about to climb for the next 7 years? Her tics were just the "tip of the iceberg". We had no clue of the co morbid disorders that would be attached to her TS, nor how present they would be in her every day life, nor that they would be even more crippling than her primary diagnosis.

 Readers know about our fight to find Ashlynd the appropriate doctors, therapies and medications, yet many may not understand that educating friends, family and teachers of her disorders has been just as difficult a task.

Here is part of an article about TS and its co morbid  "tag alongs":

Frequently, the symptoms of TS and it’s co-morbid conditions are seen as
“purposeful behaviors” not related to the disability at all, when at its very core, TS is really all about a lack of control. 
Read the full article here:
 http://tsa-illinois.org/wp-content/uploads/2012/05/Tourette-Syndrome-More-than-Just-a-Tic-Disorder-Understanding-TS-to-Advocate-for-Your-Child.pdf

Tuesday, 21 April 2015

Toyota?

Mama Kat's writing prompt this week has prompted me to share this little tale:

Years ago when my daughter Ashlynd was still very young, (3-4 years old) the family was watching television when a  commercial for Toyota came on. She advised her father and I that she had a Toyota.

We smiled at her comment and explained that a Toyota was a car, and that she didn't own one.

 She quickly responded by telling us that she had a Yoda and that it was a "toy Yoda"!

Friday, 17 April 2015

Ash has created a blog!

Be sure to check out my daughter Ashlynd's blog, called What Doesn't Kill You... She hopes to help others by sharing information and advice, and insights about her life!

An absolute MUST for canadian families wih disabled children!!

My daughter's struggle to find solace from her crippling mental health disabilities has been an ongoing battle for years. Having had a few stays in the children's mental health ward, along with taking part in a program  for children with debilitating anxiety (24/5 stay for three months), all of which took place three hours away from home, has been an ongoing struggle for both her father and I. (Not to mention her older brother)

Ashlynd's mental health has caused many ripple affects throughout her everyday life, from school to extra curricular activities to home life. In many cases these ripple affects caused more of a "lack" of life! Making sure she was getting the help she needed became our main goal for years and years. We never thought we'd ever qualify for any benefits from these trials.

 The Canadian child disability tax credit was brought to my attention some months ago by a family friend. She and her husband had investigated this "phenomenon". Weighing the pros and cons, they pursued the process by filling out the appropriate paperwork and were pleasantly surprised to have received a substantial  tax refund for the approved years.

My husband and I decided to look into the process ourselves. We approached Ashlynd's psychiatrist about filling out the claim forms, (...of which he did) and now we wait!

Although my husband and I have not received any refunds as of yet, I ask all families of disabled dependents to seriously look into this process. We all know the mental toll it takes on families, but what about the financial toll?

Please find the appropriate claim forms here: http://www.cra-arc.gc.ca/E/pbg/tf/t2201/README.html